I wanted all my lovely followers to know about an Annual Walk that is going on this coming Sunday, November 21st!
Beautiful little Celia has a terminal illness called Batten Disease. Batten Disease is an autosomal recessive disorder classified as a neurodegenerative disorder. This disease causes seizures and both dramatic physical and mental deterioration. There is no cure or way to halt the progress of Batten disease at this time. Last year, the MICU at OSUMC held a walk for Celia at Antrim Park and raised almost 800 dollars for the cause! We would like to make this an annual event in order to continue to raise awareness and research monies for this rare affliction. Please come show support for Celia and her family and for children and families suffering with this illness!
Cost: Minimum of 5 dollars a walker. Additional donations much appreciated. All money will go towards batten disease research. Please make checks out to Sara Zeller.
For more information on Batten Disease, visit the following link:http://www.bdsra.org/
View Celia's story -http://www.youtube.com/watch?v=FqPRFXNXRG0
Location:
Antrim Park 799 Greenridge Rd Columbus, OH
Time: Sunday, November 21 · 1:00pm - 5:00pm
I would so appreciate it if anyone came to walk with us - it is for a great cause, and a very precious little girl...thank you for reading this peeps :)
Beautiful little Celia has a terminal illness called Batten Disease. Batten Disease is an autosomal recessive disorder classified as a neurodegenerative disorder. This disease causes seizures and both dramatic physical and mental deterioration. There is no cure or way to halt the progress of Batten disease at this time. Last year, the MICU at OSUMC held a walk for Celia at Antrim Park and raised almost 800 dollars for the cause! We would like to make this an annual event in order to continue to raise awareness and research monies for this rare affliction. Please come show support for Celia and her family and for children and families suffering with this illness!
Cost: Minimum of 5 dollars a walker. Additional donations much appreciated. All money will go towards batten disease research. Please make checks out to Sara Zeller.
For more information on Batten Disease, visit the following link:
View Celia's story -
Location:
Antrim Park 799 Greenridge Rd Columbus, OH
Time: Sunday, November 21 · 1:00pm - 5:00pm
I would so appreciate it if anyone came to walk with us - it is for a great cause, and a very precious little girl...thank you for reading this peeps :)